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What are treatments for myelofibrosis?
Blood Cancers & Disorders | Last Active: Apr 15 6:55am | Replies (133)Comment receiving replies
I was recently diagnosed with Mylofibrosis also.
My hematologist has recommended that I have a
Stem Cell transplant. He said that it is the only cure for me and that it would be a long process to go through...
Replies to "I was recently diagnosed with Mylofibrosis also. My hematologist has recommended that I have a Stem..."
@tamijulien
I just got back from Mayo Clinic in Phoenix where I saw wonderful hematologist oncologist Dr. Cecilia. Li I’m waiting to see if I have converted to something else possibly MF I’ve had essential thrombocythemia for 34 years with some conversions to PV as well. My blood counts are all over the place recently I’ve done everything I possibly could to stay healthy with supplements, functional doctor visits, Acupuncture Healing Touch I feel I’ve been struggling to just keep myself alive now with this possible diagnosis I have wondered about stem cell therapy. Where did you go where they would possibly consider that? Thanks for your post and I hope you’re doing well
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Welcome to Connect, @tamijulien. At this time, a stem cell transplant remains the only possibility for a cure with certain blood cancers like Myelofibrosis. I had a transplant for AML five years ago. I feel amazingly fit and healthy…best yet, being cancer free for 5 years!
It is a long, challenging process but quite a few of us in the forum have had a bone marrow/stem cell transplant and we’re all here to help you through your journey when ready.
Is there any specific information I can help you with?