← Return to Has anyone had surgery for Apical Hypertrophic Cardiomyopathy

Discussion
Comment receiving replies
@karukgirl

Hello, and welcome to Mayo Connect @dreitmey, it looks like this is your first post.
Thank goodness you had one of the top surgeons in the world doing your surgery! I had a septal and papillary myectomy at Mayo four years ago this week...and I am also thankful I had it done at the Mayo Clinic. The care is like no other, and that is a blessing, because open heart surgery can be tough. But you are tougher!
I am glad you are stable and doing well now. I'm sorry you have pulmonary hypertension and heart failure. Is that a result of the surgery?
I am curious about your comment regarding interstial fibrosis and longevity...my pathology report noted the same thing, but I was never told it shortened my life. In fact I was told I have the same life span as a person without HCM now after surgery. Is this what you were told was due to the fibrosis, or a combination of your other symptoms too?

Jump to this post


Replies to "Hello, and welcome to Mayo Connect @dreitmey, it looks like this is your first post. Thank..."

My pulmonary hypertension and CHF symptoms are how they discovered the HOCM. Post surgery, these symptoms improved. I have been told my life span is average; however I have fibrotic heart muscle - stiff muscle - which doesn't push the blood as it should. Given my other diagnoses, statistically, longevity is limited 5 maybe 10 years. I hoped all symptoms would resolve but my heart was very damaged. There was a discussion of a heart transplant but there is a lot of risk with that too.