← Return to Tamoxifen input

Discussion

Tamoxifen input

Breast Cancer | Last Active: Jul 29 7:24am | Replies (35)

Comment receiving replies
@brightside21

Had both Letrozole & Tamoxifen & likewise very different experiences but both really bad.
Tamoxifen caused significant head & eye pain & effected my vision plus the more usual menopause probs. As the head & sight problems got progressively worse I was taken off the Tamoxifen after only a two weeks. I was told these were rare sidc effects & the drug obviously was causing these extreme issues. I stopped & within 2days ALL the side effects went.
Next I was put on Letrozole & within a hour if taking I was having problems.
I preserved as I was told I had to stay on these.
3 days later I could barely get out of bed or function.
I stuck.with it & progressively felt like my brain was shutting down.
I asked you come off it & blankly told no. Give it more time.
I continued & literally felt like I was suffering dementia.
I decided to stop for a day & see what happened. I immediately felt a bit better & so stopped for 3 days & rhgn felt back to normal.
My breast care surgeon was frantic & aside I had to go back on them. So I did & so the brain cells feeling of deteriation & lack of cognitive function just daily git worse & worse.
I stopped driving as I was totally unable to. I stopped most daily activities as I could barely look after my self & eventually decided to stop the tables.
This is were I am now.
Do I have no QUALITY OF LIFE by tsking Letrozole or refuse the tablets & risk Cancer returning which could take my life ???

Jump to this post


Replies to "Had both Letrozole & Tamoxifen & likewise very different experiences but both really bad. Tamoxifen caused..."

@brightside21
My oncologist said the Letrozole should not cause the moodiness or emotional roller coaster, but I have read some people say that it does. I already have brain fog from the Tamoxifen but it sounds like it was much worse for you on Letrozole. Was that the main side effect for you?

Bless your heart! Would you feel comfortable getting a second opinion? I don't know if all insurance does this but you may be able to get a second opinion through their adjunct services.

Take good care!

I’m going through issues with my pills as well! Took Anastrozole for 5 mos now have trigger thumb and my 2 baby fingers don’t work. Joint pain. Very painful. Now he wants me to take Tamoxifen. I just can’t decide to take it. So afraid of side effects. IDC, stage 1, lymph nodes clear. Thoughts?