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What are treatments for myelofibrosis?
Blood Cancers & Disorders | Last Active: Mar 17 10:19pm | Replies (60)Comment receiving replies
Welcome new members,@vas and @erincarrasco2024. As you may have learned as you start on this journey with myelofibrosis, it is a bone marrow cancer that disrupts the body's normal production of blood cells. It can cause scarring in the bone marrow and lead to anemia that can cause weakness and fatigue.
As @snakebite mentioned, treatments are no curative, but can help manage the condition. Treatment can include active surveillance, transfusions, chemotherapy or targeted therapy and sometimes a bone marrow transplant.
Here are two good articles on Myelofibrosis that explain the different options:
From Mayo: https://www.mayoclinic.org/diseases-conditions/myelofibrosis/symptoms-causes/syc-20355057
From Verywellhealth.com
https://www.verywellhealth.com/myelofibrosis-7562192
You might also be interested in this related discussion
- Myelofibrosis: https://connect.mayoclinic.org/discussion/myelofibrosis-24a025/
What treatment options have your doctors discussed with you? Have you had a positive cytogenetic test run to determine if there is a mutated gene causing MF?
Replies to "Welcome new members,@vas and @erincarrasco2024. As you may have learned as you start on this journey..."
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Colleen, you had asked me to let you know how my husbands appt went with specialist at Charlotte. The Dr. said he was seeing some leukemia cells showing up in his blood work. He didn’t seem to want to give a lot Hope. He told us he would send the treatment to our local oncologist. We had an appt. today with our Dr. he told my husband he would start treatments for 7 days thru pic line with Vidaza. Then off for a month to see how he reacts to the chemo. We have been told from the beginning there is no cure for myelofibrosis which we get and accept, but we don’t understand why they don’t even talk about hope for some time. Maybe it’s because his platelets are always low and has platelet transfusions 2 times a week. My husband has always been very healthy, so it is a nightmare now.
Dax1million