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Having Difficulty Getting Diagnosis
Hello everyone, I am a 22 year old male that has been dealing with various different types of chronic pain throughout my body. I have seen my primary care physician 6 times and all times he has said that nothing looks to be wrong with me. He has run all the standard blood tests and all have come back perfectly normal.
The pain started 3 days after receiving vaccination but to this day I am still unsure if it is because of that. Only reason I bring it up in this thread is because I was a perfectly healthy athlete before hand. My heart is palpitating constantly, my head feels foggy and constantly hurts, my body feels fatigued even after getting 7-8 hours of sleep at night, and my upper and lower left parts of my abdomen constantly are in pain. My anxiety is spiking but I can’t take medicine for it due to bad reactions to SSRI’s. I have also had trouble holding in urine for long periods of time. If I drink any liquids, about 15-20 minutes later I have to use the restroom. The pain gets worse and worse each day but nothing has come up as the culprit. I don’t really know where to go from here as I was denied from being seen at the Rochester Mayo Clinic. I just need an answer as to how I can manage the fatigue and pain I am feeling. I slowly feel as if I am slipping away and I won’t know what is wrong with me until it’s to late. Anyone know of a direction I can take to get this sorted out?
Thank you!!
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@sue15 not any better here in Ontario, Canada! Severe shortage of primary care doctors and specialists - compounded by Covid since many took early retirement t during the pandemic and more are retiring still, and not enough professionals to replace them.
We just moved to a new city eighteen months ago and it took us a year to find a family physician. My husband and I are the lucky very few. There are hundreds of people still looking for general physicians - never mind specialists! Our new doctor stopped taking new patients two weeks after we registered with her!
I agree. The health care system has really changed. It’s so difficult to get answers. I fill like I am on an island and know one cares. It’s so stressful and depressing. I had appointment three weeks out with a neurologist. So today , I called to verify my status and the receptionist told me it has been canceled. The reason is because she is going on vacation. I never received a call about the cancellation. Most of my appointments are 3 to 8 months out. Some days you feel like giving up.
I have never heard of central pain amplification?
What is it?
I had Complex Regional Pain Syndrome which started in the left foot but then spread.
15 years ago Mayo in Rochester knew what it was and how to treat it. Recently I’m getting bone & muscle pain & don’t know why?
Is that your symptoms?
@sommerreign I am curious about the difference between Centralization/Central Pain Amplification and Complex Regional Pain Syndrome. I have watched a video on Centralization and a PT recently explained it to me. I used to wonder if I had CRPS but providers are telling me it's Centralization (which as you know is happening in the brain).
Perhaps Centralization is more temporary?
It started with a stiff knee joint Jan. ‘21. Then severe pain in both knees and stomach. Flareups started Jan. 21 but I didn’t know what they were. The nerves are sending wrong messages to the brain. Pain messages. My jaw was moved when I had the jaw pain. My whole body is numb. Facial pain, hands, wrist, feet, legs, shoulders. Pain Specialist diagnosed Central Pain Syndrome or Amplification. Nothing I can do. I’m on medication,!use CBD cream for hands, use Lidocaine patches and cream. Try to walk and do exercises with my pt. Losing my hair quickly. I feel like I’m wasting away. My GP just told me recently to get a second opinion at Mayo in Rochester. We shall see.
Yes, I have bone pain and bone loss in addition to muscle pain. So hard to get people to understand it. What kind of doctor diagnosed your CRPS?
I hear you. Sometimes it’s not pain they can see or understand which makes it worse. I’ve been watching my body deteriorate for almost 4 years. Family out of town. I do have a good group of friends. I get outside a lot.
Hello,
You asked suggestions where to go from here… Did your primary physician suggest any diagnosis? Or suggest sending you to an internal specialist.If you were ever positive for Covid then did your physician suggest it could be related to long Covid? You don’t need to answer these to me , I’m just brainstorming with you. What about seeing a naturopath. They take a thorough approach to wellness and may find some specifics about your body and actions to address those specifics. I hope you find a healthy way through this and soon start to feel positive changes. You need to have time again with Your primary dr. And have this conversation about please where do I go from here? All the best to you