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Blood Cancers & Disorders | Last Active: Oct 22 8:20pm | Replies (7)
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Replies to "Hi, thanks for your interest, I have been suffering from essential thrombocythemia for 1 year"
Hi Vicky58, There’s a large network of members in Connect who also have ET and share their experiences with the blood condition as well as some of the treatments they’re on to help lower and keep their platelet count to a healthy level.
I hope you’ll read through some of the conversations and feel free to jump into a discussion with questions or comments.
Here are links to 2 of the discussions
Essential thrombocythemia (with members @tessa @preacherswife1977 @nohrt4me @nyjean and many others who have ET)
~https://connect.mayoclinic.org/discussion/essential-thrombocythemia-26a26f/
~Essential Thrombocythemia: Looking for information and support (with members @shenriq @maryandbud @nohrt4me @richie123 and others)
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
When you were diagnosed with ET did your blood results show a mutation such as JAK2 or CALR?