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I was diagnosed with MGUS four or five years ago, and have been seeing the same hematology practice since then. He tells me everything is stable, but I just looked at my blood work from a month ago. I see my recent free kappa light chain reading (52.8) is way higher than the reference range 3.3-19.4. Six ago that reading was 54.0 so at least it's down a bit, but a year ago it was 46.0. I left a message for the NP I see to call me about it but haven't heard back - he didn't mention it at all in my recent visit. Should I be concerned?
Replies to "I was diagnosed with MGUS four or five years ago, and have been seeing the same..."
@steveutnv we are all so different with different coexisting conditions. The question that you are asking, I believe, is what is the threshold for concern about your blood analysis? That is an excellent question for your hematologist/oncologist. At what level would the concern rise to a level where your physician would consider treatment? What might that treatment look like?
It is sometimes very challenging to get a doctor on the phone so you might try to get a telehealth appointment which he or she can charge for… That sometimes makes the time that they spend talking to patients more palatable.
Will you let me know how this goes for you?
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He called me back and says he's watching it and my next adventure will probably be a bone marrow biopsy. I also have thrombocytopenia and the low platelet count concerns me more than MGUS.