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Rebuilding muscle mass post-Lupron
Prostate Cancer | Last Active: Sep 15 7:58am | Replies (30)Comment receiving replies
Interested in the "not fun" comment. Please expound.
77 y.o. PC Dx 9/23 with PSA of 27 (interesting that I asked my PCP for the PSA test, otherwise would have done it). Bx mixed 3/4-4/3. Body CT negative. PSMA scan confined to the prostate. First Lupron injection 1/31/24. Within a couple of weeks excruciating thigh, hams, and glut pain. Nearly impossible to get to the bathroom, etc. RT, seemed surprised and suggested Excedrin extra strength to little avail.
Prior to Dx and Lupron, 25 mile a day bike rider until 5/23 Achilles, then to PT and gym 4 days a week with mild-moderate weights, stationary bike and swimming. Second Lupron in June coinciding with radiation.
Severe cramps persist complicated by peripheral neuropathy affecting balance, etc., but mostly the pain.
Question: Does this pain subside over time or persist?
Question: Starting to feel leg weakness climbing stairs, etc.
What to do?
Replies to "Interested in the "not fun" comment. Please expound. 77 y.o. PC Dx 9/23 with PSA of..."
I was treated for prostate cancer in December 2021 and took the Lupron shot a moth before. During proton treatment my hips got bad and I had a hard time walking.
A neurologist defined it as abnormal gait and sent me to physical therapy and got no improvement. I read online about people having this problem with low testosterones and took the test my score was low 500's I started TRT and two days later I was back to walking normal like it never happened.
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My best guess: try Trelstar injection instead of Lupron. My injection Nurse told me : Lupron injection uses a bigger needle and more fluid to inject into the body. I get mine every 3 months and don t have the side effects you described vividly. Best of luck. I m 18 months into the Trelstar doing ok, just tired out a lot but NO PAIN.