1. < Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

CAR-T - Looking for statistical data for over 70 age group

Posted by joefmsi2020 @joefmsi2020, Oct 18, 2022

After being told this January that my cancer was back (after 20 years of remission) I have undergone several months of chemo. Unfortunately, the cancer has been resistant but my oncologist is suggesting CAR-T. I have tried to find out if results are good for my age group but cannot find much statistically. I will be meeting with the oncology group soon (after having results from last scan). Does anyone know of any statistical data out there for over 70 age group? Thanks in advance.

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

burchfield | @burchfield | Jul 9 11:20am
In reply to @cdsarmiento "He did well with the 3 days of chemo before the infusion, but he had done..." + (show)
@cdsarmiento

He did well with the 3 days of chemo before the infusion, but he had done well with all prior chemo sessions. The worst thing he experienced in the hospital after the infusion was Neuro toxicity. He lost ability to form words or answer questions. Like a stroke. Thankfully, with treatment, he returned to normal over the next day or so. The whole process made him very weak but with Physical Therapy he gradually got stronger. The process is not easy but it killed all cancer cells in his body. Well worth it.

Jump to this post

Thank you for sharing your husband's experience. My husband receives chemo this week, and then Tcells and hospitalization on Monday.

REPLY
2 replies
Mentor
Lori, Volunteer Mentor | @loribmt | Jul 9 11:55am
In reply to @burchfield "Thank you for sharing your husband's experience. My husband receives chemo this week, and then Tcells..." + (show)
@burchfield

Thank you for sharing your husband's experience. My husband receives chemo this week, and then Tcells and hospitalization on Monday.

Jump to this post

Hi @burchfield. Welcome to Connect. This is such a great forum to be able to speak candidly with other members who are going along the same medical journey. I’m so happy you joined into the conversation with @cdsarmiento. Her husband was 84 at the time of his CAR-T Stem Cell implant and continues to do really well 2+ years later. May I ask the age of your husband? What medical condition brought him to needing the CAR-T therapy?

REPLY
burchfield | @burchfield | Jul 9 12:14pm

My husband is 73. He was in remission from Non Hodgkins lymphoma for almost 3 years. Additional treatment was not successful.

REPLY
cdsarmiento | @cdsarmiento | Jul 9 2:01pm
In reply to @burchfield "Thank you for sharing your husband's experience. My husband receives chemo this week, and then Tcells..." + (show)
@burchfield

Thank you for sharing your husband's experience. My husband receives chemo this week, and then Tcells and hospitalization on Monday.

Jump to this post

I wish him well. While in the hospital he will be carefully monitored and have the attention of his full Care Team at all times. One interesting part of the treatment. They will have your husband answer some simple questions (like identify simple objects, count backwards from 100 by 7, etc.) They also had him write a simple sentence that he chooses. They had him do this about every 4 hours. This showed them any changes in brain function.
Reaction to the treatment varies by person, but the Care Team responds to anything that comes up. Focus on those CAR T-cells attacking his cancer. It is truly amazing. Good luck!

REPLY
View MoreView Less
Please sign in or register to post a reply.