Fibromyalgia - Does anything help relieve severe pain during flares?

Posted by ripley @ripley, Mar 7 11:16am

I was officially diagnosed with Fibro two years ago. I don't take any medications except for 5mg Flexeril (muscle relaxer) at night during flares, and some supplements recommended by my functional medicine Nurse Practitioner that don't seem to be helping. A hot bath before bed helps a little.
I'm now in the middle of a flare and in extreme pain all day. I try to stay busy to take my mind off it, but it's very hard to cope.
I'm very reluctant to go on meds such as Cymbalta, Lyrica or Gabapentin. I've read they often don't help and have bad withdrawal issues if you want to stop taking them. Most doctors don't offer much help except for offering drugs, with little knowledge about their effectiveness and side effects.
I'm looking for support or help with how to continue living with this. What works for others with Fibro to lessen the pain?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

During the flare event, I roll he arm or leg side to side to interrupt the nerve spasm. Deep controlled breathing also helps reduce the event. I take Palmitoylethanolamide (PEA) as a preventative pain solution. The brand matters. I take 1 400mg capsule in the morning. This works better for me than MSN.

REPLY

Hello,
I tried cupping, as it affects the deep muscles in the body, it relaxes my muscle, increase the blood flow and oxygen to the tissue, reduced the stiffness I have. Also, Epsom salt baths, and I do exercises like Gi Gong, yin yoga, walking, gentle stretches and meditation. When I'm having a flare up, in that moment I do breathing exercises, as it calms me down, reduces the anxiety and stress to my muscles, so they don't tighen up even more, I stretch put my body and try to relax it as much as possible and use pillows or cushions to make myself comfortable until it eases. I also look at what I eat, more vegatables, quinona instead of rice, more wholefoods, fresh foods, as I have IBS, allegeries and some food intollerances, so I avoid a s much processed foods as possible. I work freelance due to my fibro, several herniated discs, and experience neurophatic pain and sciatia, so I do everything I can to keep my body mobile so I can be self sufficient, and get help in at home when I need it. It's great to read some individuals are having saunas, steams, massages, physio, counselling, exercise and holistic treatments to help reduce their symptoms as medication alone won't help us manage our conditions. It requires an intergrated approach of several methods.

REPLY
@dtraci

Hello... I've been researching Infrared therapy for Fibromyalgia pain, immune support, better sleep and other ailments. Has anyone tried this type of therapy?? I'd love to hear everyone's thoughts about it.

Jump to this post

Hello,
Yes I have had infrared therapy when I have cupping treatments with my Chinese Doctor, he is brilliant, it relaxes my muscles, reduces my pain, symptoms and helps me get some sleep. That's my experience, others may be impacted differently, I am open to more holistic options and exercise.

REPLY

God Bless You. I have had Fibro for 29 years. I too take Flexeril as I can't tolerate any of the other meds. I take 650 of Tylenol when needed as I can't take NSAIDS. I get a massage monthly, soak in Epson salt as hot as I can stand it, use Voltaren Gel (over the counter for arthritis...use to be prescription) and heat packs.

Sometimes when I take Flexeril, I lie down with heat packs and if I can doze up for a few minutes, I get relief. This summer humidity and heat worsens the Fibro for me. I take Magnesium, Vitamin D3 and B12 as well to help.

Praying for you to get some relief. I understand. It not only is painful but tiring.

REPLY
@calmmylife57

Hello,
Yes I have had infrared therapy when I have cupping treatments with my Chinese Doctor, he is brilliant, it relaxes my muscles, reduces my pain, symptoms and helps me get some sleep. That's my experience, others may be impacted differently, I am open to more holistic options and exercise.

Jump to this post

What is a Chinese Dr? Is this someone at a regular clinic or PT place? Thanks.

REPLY
@ripley

What is a Chinese Dr? Is this someone at a regular clinic or PT place? Thanks.

Jump to this post

Traditional Chinese Medicine doctors usually practice acupuncture and use traditional Chinese herbs. Mine takes insurance, which is great. He has a solo clinic and is an 8th generation TCM dr. He was a physician in China, but now does the acupuncture and herbs in the US. It has really been helpful for me and the acupuncture is quite relaxing.

REPLY
@calmmylife57

Hello,
I tried cupping, as it affects the deep muscles in the body, it relaxes my muscle, increase the blood flow and oxygen to the tissue, reduced the stiffness I have. Also, Epsom salt baths, and I do exercises like Gi Gong, yin yoga, walking, gentle stretches and meditation. When I'm having a flare up, in that moment I do breathing exercises, as it calms me down, reduces the anxiety and stress to my muscles, so they don't tighen up even more, I stretch put my body and try to relax it as much as possible and use pillows or cushions to make myself comfortable until it eases. I also look at what I eat, more vegatables, quinona instead of rice, more wholefoods, fresh foods, as I have IBS, allegeries and some food intollerances, so I avoid a s much processed foods as possible. I work freelance due to my fibro, several herniated discs, and experience neurophatic pain and sciatia, so I do everything I can to keep my body mobile so I can be self sufficient, and get help in at home when I need it. It's great to read some individuals are having saunas, steams, massages, physio, counselling, exercise and holistic treatments to help reduce their symptoms as medication alone won't help us manage our conditions. It requires an intergrated approach of several methods.

Jump to this post

Hi Ms calm my life. It's funny, I just posted very similar comments and find that interesting. I have nerve damage, carpal tunnel, neuropathy, diabetes II and plenty of aches and pains. All your suggestions are wonderful, THANKS
"noteworthy"

REPLY

I take 1 Tramedol per day or night. That allows me enough relief to get some things done during the day. If I can get through the day without that then I use it to help me sleep at night. I also live in a state where THC is sold legally and I take and edible with CBD at night to relax my muscles and allow me a full night's sleep. I also supplement with Celecoxib. My internal medicine doc prescribed Fancyclovir due to my medical history. There are studies on that combo for Fibromyalgia that show its efficacious for fibro pain management. Fibromyalgia is a real hell on earth illness.

REPLY
@memphismes

During the flare event, I roll he arm or leg side to side to interrupt the nerve spasm. Deep controlled breathing also helps reduce the event. I take Palmitoylethanolamide (PEA) as a preventative pain solution. The brand matters. I take 1 400mg capsule in the morning. This works better for me than MSN.

Jump to this post

What brand PEA do you take and recommend? Thanks. Jean

REPLY

Nootropics Depot Palmitoylethanolamide Capsules | Pea | 400mg Pills is what I take 1 per day in the AM. I hope this also works for you.

REPLY
Please sign in or register to post a reply.