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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@biddypoppop

I have been living with ET for over 10 years. Also taking hydroxyurea for most of the time. I am alive and doing well.... grateful it was diagnosed and able to be treated. I am an 80 year old female.

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Replies to "I have been living with ET for over 10 years. Also taking hydroxyurea for most of..."
mikemp | @mikemp | Jul 10 1:39pm

Good to know. I am 70 and just diagnosed with ET. Been on hydroxy for 6 weeks. Platelet count going down and little to no side effects.

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Merle Richman | @wisner | Jul 11 11:00am

I was diagnosed with ET 2020 when I was 86 and have been on hydrox for about 4-years to keep platelets in near normal range. Now almost 91, I am also on 500mg Eliquis twice daily and recently stopped taking baby aspirin on advice of cardiologist and oncologist. I had been taking baby aspirin maybe 25 +|~ years! In general it now seems doctors more concerned with bleeding issues should I fall… than with how blood thinners such as baby aspirin will prevent stroke! This council to drop baby aspirin comes at complete surprise after taking for at least 25 years. Anybody in same boat? Merle Richman

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