I have a diagnosis of CCUS as well. I chose to let my Doctors do the worrying for me. why worry about something we have no control over. I just had my 4th Bone marrow biopsy.
Like you my counts have been up and down for 30 years. Sounds crazy , I know. Sure I find it inconvenient to wear masks in many crowded places but it is what it is. I sometimes take my mask off just to feel comfortable. My advice, would be to hang in there and know you are not alone.