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Feelings when tapering: My journey

Polymyalgia Rheumatica (PMR) | Last Active: Nov 13 10:21am | Replies (57)
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@edwardh

My doctor told me to not hesitate to go back up to knock pmr down if symptoms begin to emerge at a lower dose. There is nothing wrong with adjusting the dose to find where control of pmr is effective.

For many of us pmr can take a year or two to burn out. Perhaps alternating between 12.5 and 10 would be worth a try. Dropping from 15 to 10 in 6 weeks is a pretty aggressive taper.

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lungranger77 | @lungranger77 | Jul 9 11:02am

Hello @edwardh .
Thanks for your comments. I'm at 17 months now with PMR. Had one major flare last year in September. I've been down to 5mg/day now for almost two months per my doctors plan. Finally settling into the change. The plan now for me is to go down to 4mg/day alternating with 5mg/day. I guess I can understand the strategy; If it doesn't work I stay on 5mg as my lowest, effective dose? If it does work I can drop down to 4mg safely? I've developed a type of security blanket with the Prednisone because it has helped so much with my L4 L5 lower back issues.
we'll see how it goes. If I have to stay at 4mg or 5mg permanently it's ok with me.
Thanks to all of you who have provided such good info which has helped me navigate thru the nuances of PMR. Ernie

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