Hi Rosemary, Just got results from pill cam and it was normal. It seems I'm<br>really healthy except for my PBC and I don't think that is bad. I do have a<br>question though. My primary Dr wants me to go on a statin for high<br>cholesterol but I read statins can cause liver damage. Do you know if this<br>is true. Thanks for keeping in touch.<br>

@jackieg Thanks for the update. Congratulations on your good health!
As for the statin cholesterol drug, that is a doctor/pharmacy question. Be sure he is aware of your PBC. A lot of drugs, both prescribed and over the counter, have this 'can cause damage to liver' warning. Benefit vs health risk is considered. And routine labs to monitor liver functions are often scheduled.
Are you going to be monitored for your PBC by your GI?
My primary care doctor and my GI communicated with each other when questions arose.
Rosemary

Hi Rosemary, i checked with my Liver Specialist about the statin and he approved.. I was concerned because of the side effects listed with taking the statin. My primary care Dr. knows I have PBC. I started back taking the statin after consulting with my specialist. I am fortunate to have good doctors who keep up with my progress. I'm feeling better since I've gotten so much good info from the people on this group and thank you for your help.

@jackieg, Hi jackieg. I'm clearing out some of my past email notifications and I came across your name. I hope that you are still doing well with managing your PBC. And that you are feeling okay. Rosemary.

Thanks for asking. I'm on ursodiol and having some nausea and vomiting problems but doctor changed the way I'm taking it and so far it is ok. Won't know if it has progressed until I go back for blood work this summer. I feel pretty good but not great. I'm working on that with exercise and healthy eating. 

@jackieg, I am so happy to hear from you. Thank you for your reply. It sounds like you and your doctor are coming up with a good plan for the nausea and vomiting and ursodiol. It is my understanding that it does cause some side effects for some people. Anyway, it is neat that your doctor is changing how you take your URSO, hopefully that may help reduce some of the uncomfortable side effects. I can't remember how I took them - with/without food or time of day. But I do remember that my hubby called them 'horse pills' because of their size!
I want to congratulate you on exercising and healthy eating That is often so hard to do, but so-o-o important, especially when dealing with a yucky chronic condition like this one.
Sipping gingerale (flat and room temperature) helped me when I felt nausea. Also sucking on mints gave me some relief.
I will be having my routine labs drawn end of Jan. People can't believe me when I say that I dread that needle. They think that because I'm "used to it", that it should be easy for me. Ha!
Keep in touch. Let me know how the change in taking ursodiol affects the discomfort.
Rosemary