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Anyone else have Clonal Cytopenia of Undetermined Significance (CCUS)?

Blood Cancers & Disorders | Last Active: Oct 20 2:20pm | Replies (74)
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@audreyl23

I've had a diagnosis of Clonal Cytopenia of undetermined significance since 2018. (Biopsy and genetic sequencing panel proven genetic mutations). My WBC, ANC and platelets have been below normal since 2012. CCUS males one highly susceptible to myelodysplastic syndrome and AML. Does anyone else on this site have CCUS?

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Replies to "I've had a diagnosis of Clonal Cytopenia of undetermined significance since 2018. (Biopsy and genetic sequencing..."
Patty, Volunteer Mentor | @pmm | Jul 7 3:53pm

@audrey123
Welcome to Connect. There are members who share this diagnosis.
https://connect.mayoclinic.org/discussion/dose-anyone-else-have-ccus/
Some members who have posted CCUS threads are @j68eis and @mlarneson.
Since you were diagnosed in 218, has your CCUS progressed during that time or have you developed other symptoms?

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j68eis | @j68eis | Jul 8 2:12pm

I have a diagnosis of CCUS as well. I chose to let my Doctors do the worrying for me. why worry about something we have no control over. I just had my 4th Bone marrow biopsy.
Like you my counts have been up and down for 30 years. Sounds crazy , I know. Sure I find it inconvenient to wear masks in many crowded places but it is what it is. I sometimes take my mask off just to feel comfortable. My advice, would be to hang in there and know you are not alone.

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