Hailey-Hailey: Anyone have some solutions that have worked for them?

Posted by kbetko @kbetko, Jul 6 1:49pm

I have been dealing with Hailey-Hailey for about 15 years with some success with Clobetasol, laser treatment and Botox. Does anyone have some solutions that have worked for them?

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contek | @contek | Jul 7 7:45am

Low dose naltrexone is working for me. 4.5 mg daily. I did research on PubMed and brought it to my doctor. I have been on it about a year now with only one small breakout.

kbetko | @kbetko | Jul 7 10:40am

Thanks,

Colleen Young, Connect Director | @colleenyoung | Jul 7 2:58pm

Hi @kbetko, in addition to the tip from @contek, I'm tagging fellow members like @dschramek @rnwwmn1 @huitzilin76 @angelita1 @lcl44 @vthailey @denziejones @dschoening @keokuk55, who also live with Hailey-Hailey disease (HHD).

You might like to also review the helpful tips offered by members in thsi related discussion:
- Hailey-Hailey Disease https://connect.mayoclinic.org/discussion/hailey-hailey-disease/

sablorlorenz | @sablorlorenz | Oct 29 2:18pm

Fir me laser treatment was the best.

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