Hailey-Hailey: Anyone have some solutions that have worked for them?

Posted by kbetko @kbetko, Jul 6, 2024

I have been dealing with Hailey-Hailey for about 15 years with some success with Clobetasol, laser treatment and Botox. Does anyone have some solutions that have worked for them?

Interested in more discussions like this? Go to the Skin Health Support Group.

Low dose naltrexone is working for me. 4.5 mg daily. I did research on PubMed and brought it to my doctor. I have been on it about a year now with only one small breakout.

REPLY

Hi @kbetko, in addition to the tip from @contek, I'm tagging fellow members like @dschramek @rnwwmn1 @huitzilin76 @angelita1 @lcl44 @vthailey @denziejones @dschoening @keokuk55, who also live with Hailey-Hailey disease (HHD).

You might like to also review the helpful tips offered by members in thsi related discussion:
- Hailey-Hailey Disease https://connect.mayoclinic.org/discussion/hailey-hailey-disease/

REPLY

Fir me laser treatment was the best.

REPLY

After 38 years of trying many different prescriptions to be free of Hailey Hailey I began using Dupixent two years ago. I have been free of Hailey Hailey with self injection every two weeks. I cannot express what a blessing it was been. The only challenge is overcoming the cost.

REPLY
Please sign in or register to post a reply.