Has anyone been experiencing mobility issues on their left or right

Posted by bill1980 @bill1980, Jun 22 10:56am

Hello everyone,I wanted to share my story and connect with others who might be going through similar experiences. In 2017, I was diagnosed with a brain tumor. The location and size of the tumor were such that my family was advised to prepare for the worst, as it seemed unlikely that I would survive. However, against all odds, I walked out of the hospital.Despite my survival, the journey has not been easy. I was faced with the decision of whether to undergo a biopsy, which carried the risk of paralysis or blindness. I chose not to proceed with the biopsy and instead embarked on my path of recovery outside the hospital setting.Recently, I have been experiencing significant mobility issues on my left side. This has added a new layer of challenge to my daily life and activities. I’m reaching out to this community to find support and share experiences with others who might be facing similar mobility challenges due to brain tumors.Has anyone else experienced similar issues? How have you been managing and what treatments or therapies have you found helpful? I look forward to hearing your stories and any advice you might have.Thank you for reading and I wish everyone strength and support in their own journeys.Best regards, Carson Gabriel

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purpleturtle | @purpleturtle | Jun 23 10:22am

I had menginoma tumor on the left side of my brain treated initially with Gamma knife at Mayo Clinic to slow or stop the growth. Unfortunately it didn't work and I had strokes 2 months apart resulting in emergency brain surgery. As a result I have mobility issues on my entire left side that require me to use a cane or walker.
The doctors have no explanation for this since left sided tumors should affect the right side. The mobility issues are getting worse. My neurologist believes it could be a build up of scar tissue. I have frequent brain scans every 6 months and so far there has been no regrowth. I hope you can get some help.

thomhorowitz | @thomhorowitz | Jul 6 1:47pm

A proper diagnosis is critical. With stereotactic appoch, disability is unlikely. You do need a cutting edge hospital with full neurosurgery program. Especially a neurosurgery fellowship program.