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Blood Cancers & Disorders | Last Active: 1 day ago | Replies (862)
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Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to very high levels but they continue to tell me it’s ok. They primarily rely on marrow biopsies to tell them if it’s changing.
Now I have been diagnosed with Amyloidosis, which appears to be somewhat associated with the MGUS but not frequently, so it may start a new path for me.
I hope you continue to do ok. Keep looking at sites like the Mayo Clinic, they seem to have the better information on MGUS and associated conditions!
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@harley22 and @coug42 It's not unusual to have a protocol of watch-and-wait when it comes to MGUS. Having a knowledgeable hematologist oncologist is crucial, in my humble opinion.
Yes, there is a lot of information out there from Mayo Clinic, and also the International Myeloma Foundation [myeloma.org] It is not to scare you, but educate you. MGUS does not always progress to the next stage, and if it does, it can take several/many years. An educated and informed patient is always going to be in better position to address whatever may come in the future, and and handle what is going on in the now!
Ginger