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I think I have PMR. The pain in Iliac crest is so intense. PMR ?
My GP sort of blew me off. I am a chronic pain patient with extensive spine issues. I have rods in my neck, 2 fusions and stenosis in L/S spine. I have also recently developed a more intense pain as I mentioned in my Iliac crests, in my shoulders and have had ongoing pain in my scapulas. I am loosing the ability to LIVE with each passing year and now I have this other pain. My pain doc and GP tend to blow me off. They act like I should be satisfied with the medication I'm receiving although I respond well to the steroid's that I'm given time to time in order to decrease a flare up of inflammation that occures in my spine. I requested a daily low dose steroid because I do improve when I get a steroid. I was told no because of my osteoporosis . I have new pain and new problems but they act like it's not their problem. How do I make someone listen?
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Primary care docs mistakenly dismiss a patient's frequent complaint of pain. They commonly refer to this as DSB, drug seeking behavior. I had the very same experience when I suddenly (literally overnight) couldn't move without excruciating pain. I sought out various specialists for several months because my PCP wouldn't see me. The specialists paid attention, ordered labs and imaging studies, and I was referred to a rheumatologist in Boston. He knew right away it was PMR and I was put on prednisone. If your insurance doesn't require a referral from your PCP, you can try to get an appointment with a rheumatologist.
Sorry you are going through this. 😥
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3 ReactionsYou might be better off going to a rheumatologist rather than a primary care doctor. Also, watch what you eat. Go on line and look up PMR and follow their guide on what and what not to eat. If someone had told me that 5 years ago I would have been much better off. The everyday foods we all eat can make pain much worse, Potatoes, tomatoes, egg plant, sweet peppers, pork, and quite a few more. If it is PMR then there is treatment available. It won't go away overnight but it will come to an end, it's just a long bumpy road to get there. Best of Luck and keep connected.
Sorry for this "painful" response to an already very painful physical experience. Makes it worse that many of us don't really know what's going on. At any rate, I've seen a rheum and they have no problem at all prescribing steroids (which I can't take) as long as I'm on osteoporosis meds. The rheum told me more patients than she can count are on both. Hope you can find a good rheum to work with and get this sorted out.