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Contracting/developing polycythemia vera

Blood Cancers & Disorders | Last Active: Jul 8 10:28am | Replies (9)

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@inevanmac

I was diagnosed with PV two years ago. Absolutely no exposure to radiation. Haematologist says it’s caused by the JAK2 gene, the appearance of which in one’s system is still a mystery.

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Replies to "I was diagnosed with PV two years ago. Absolutely no exposure to radiation. Haematologist says it’s..."

What, you have never in your lifetime had an X-Ray? Yes, the hematologists say there is no 'known' cause of this disease but as we know from history, there is always a cause.

Same. Damn that JAK2 gene! I was happy to hear it’s not inherited so I didn’t have to worry about my children. Seems odd, it’s a bone marrow thing and not inherited right? Just dealing and glad it can be treated. Not crazy about the hydroxyurea but I’m on a low dose and it’s working. Also it’s super cheap. Take care ❤️