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Blood Cancers & Disorders | Last Active: 1 day ago | Replies (862)
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I agree
I was diagnosed several years ago also with MGUS and have been under the care of an oncologist hematologist
Test for amyloidosis was neg, and every 6 mos I go for bloodwork, and yearly a skeletal X-ray to check for bone tumors.
My results have been good, labs good also.
I too know little about MGUS, and don’t get much info from the doc.
All she says is we just have to assess my labs every 6 mos
Replies to "I agree I was diagnosed several years ago also with MGUS and have been under the..."
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Sounds like our treatments for MGUS are very similar. I watch the IGM levels increase to very high levels but they continue to tell me it’s ok. They primarily rely on marrow biopsies to tell them if it’s changing.
Now I have been diagnosed with Amyloidosis, which appears to be somewhat associated with the MGUS but not frequently, so it may start a new path for me.
I hope you continue to do ok. Keep looking at sites like the Mayo Clinic, they seem to have the better information on MGUS and associated conditions!