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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)
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@lynnevb

I have posted many times on this site. A shortened personal history. 21 years with ET (triple negative). On hydrea for 10 years (since age 60). Doing well so far. I am now posing a question to the community or the "connect director". I have read elsewhere that ET is more prevalent in people with Ehlers-Danlos Syndrome (loose joints and scoliosis among other telltale signs). Does anyone know any more about this? Just curious .

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Replies to "I have posted many times on this site. A shortened personal history. 21 years with ET..."
nohrt4me | @nohrt4me | Jul 6 8:39am

Would be interested. I have severe scoliosis. However, Dad also had ET, and no scoliosis or other ailments.

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Colleen Young, Connect Director | @colleenyoung | Jul 10 5:25pm

@lynnevb, I'm no expert. But I search your question and found this:

- Hemostatic abnormalities in patients with Ehlers–Danlos syndrome https://onlinelibrary.wiley.com/doi/full/10.1111/jth.14310

Do you also have Ehlers-Danlos Syndrome?

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