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Reclast Infusions: Side-effects & Recovery time
Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (605)Comment receiving replies
@beanieone There is good evidence that Reclast can often be taken far less often than every year perhaps every 2 years. . I'm guessing the only reason it's given every year (besides the profit motive) is that doctors (and patients) want to simplify things. Just give it every year and you do not have to use bone markers to know if it's still lowering bone cleanup. If you track your bone markers, ctx in this case you can wait until the ctx starts to climb before having another infusion. That could be 2 years or even more. Lani Simpson said recently that if your ctx is around 200 do not repeat, at 250 or 275 maybe repeat.
Replies to "@beanieone There is good evidence that Reclast can often be taken far less often than every..."
@awfultruth, Thanks for the intel about CTX. My rheumatologist said that a DEXA is the only test necessary while on bone builders. I essentially fired that doc and met with a second rheumatologist last week. This doc is fantastic - he actually listened to my questions and provided thoughtful, informative answers. He agreed that a baseline CTX would be helpful going forward and understood my apprehension about Prolia.
The new doc also wanted to confer with a colleague about the administration of Reclast after having perhaps 6 or 7 infusions. I should find out today if that will happen. When I asked him what the consequences might be for too many Reclast infusions, he stated, as another member stated here, the fear is ONJ and spontaneous femur fracture. He also ordered x-rays of both femurs to get baseline info.
Happy Monday, all! Cheers!
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Thanks for weighing in, @awfultruth!
Since my doc informed me that Reclast stays in one’s system for a “long time”, I too have wondered why I was given five annual infusions followed by a drug holiday, then two more before Tymlos/Evenity which I just completed on June 27. I’m not sure how much was really known about Reclast when I had my first infusion (2011).
I asked my doc if there was any way to monitor bone growth/deterioration after Tymlos, Evenity, and Reclast; he said the DEXA was the only test necessary and then only one every two years because “bone grows slowly”. Of course, I had to chase him down the hallway after my appointment without so much as a “things are fine” or “do you have any other questions”. After reading your post about CTX markers, a light bulb came on in my head. What a simple, non-invasive check for what’s happening with our bones. I am happy that I will be able to see another rheumatologist on the 12th for a second opinion about my future treatments. I will add the CTX question to my list.
A heartfelt thank you to you and all the other members of this board who have given me a wealth of information on ways to combat OP. Cheers!!!