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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)Comment receiving replies
79 CALR + for 3 months and improving with meds so far. Lab update today...Had not had a CBC for more than 4 years...then this popped up with move and new PCP. I was shocked and very anxious , felt let down by my body. In retrospect can id subtle symptoms and a feeling something "had changed....something wrong" during extended intense stressful caregiving for my late husband. Adjusting to meds .....noting some intense fatigue at times, but relieved with rest. Learning that dosing and meds is more of an art and balancing act than just science. Feel lucky I have a PCP who knew to refer to specialist and getting a hematologist I feel I can trust.
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@bluehorse, it is so easy to ignore one's own health when in the intense phase of caring for someone close to you. How are you doing? What are next steps for you?
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I'm 70 and CALR+ x 15 yrs. Glad you found a good doc! My first hemo was unempathetic, said ET was symptomless, so if I was tired, it was age or menopause. BUT she was great at diagnostics and dosing. After she retired I got a young hemo. She started asking about fatigue levels and seems more clued into symptoms. So I feel that, between the two and a good PCP, I have recd good care.