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A Bizarre Change in Condition

Polymyalgia Rheumatica (PMR) | Last Active: Jul 8 5:17pm | Replies (35)

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@linda7

I have learned a lot about communicating with doctors in the course of my PMR, the first significant illness I have had at 74 so I have not had much practice. I diagnosed myself with PMR after my PCP said my pain was spine-related and sent me to Pain Management. I had all the classic symptoms but only one of my inflammatory markers was only mildly elevated. I went back to my PCP and didn't tell her my conclusion but just stated all the symptoms that were classic PMR and left off a few that I thought were probably spine-related and just confused the issue. She said, " You have PMR". Doctors like to come to their own conclusions. They also don't like to be given too much information at once. I try to keep it as simple as I can. She gave me a rheumatologist referral but I couldn't get in for 4 months and she did not want to start prednisone. I got worse and called in and left a message with the assistant: I have 3 issues: I can't see the rheumatologist for 4 months, I am spiking fevers, I have a headache at my temple. I got in the next week since they suspected GCA. I was pretty sure the headache was related to the fever and not GCA but I did what I had to do to get taken care of! It helps a lot to have a medical background but the internet can fill in quite a bit. Sandmason, this is not meant as a criticism of how you handled your doctor interaction just my 2 cents about avoiding negative doctor interactions and getting what I am pretty sure I need.

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Replies to "I have learned a lot about communicating with doctors in the course of my PMR, the..."

First of all, lucky you that you have not had any real health problems. Awesome stuff.
I have been pretty lucky myself with a few bumps in the road, but mostly quite well and very active.
I have very much the same philosophy as your with docs. Give them the answer and they'll take it. Keep it simple. I hide my list of questions/information under my leg so they don't see it. Apparently, they don't like lists.
Tell me, did you have GCA? Also, what did they do for you? Steroids? How are you doing now?