Thanks @susanjane77, I was very interested in your history with six infusions in consecutive years; I maxed out at five. My doc told me that Reclast remains in ones system for quite awhile, so perhaps I can prolong my infusions by getting one every other year???
I hope to meet with a new rheumatologist within the next few weeks to have all of my questions answered - as I just finished Evenity, it’s a priority visit, but I need to get approval from my current doc, the new doc, and the department heads in two facilities!
My fingers are crossed for being able to get another turn at Reclast as I’ve had a four-year hiatus and had no side effects during/after treatments.
I’m so glad to hear you’ve not had any frax and I’m sending you good thoughts for your scores to be great! Hopefully with the meds and avoiding “risky behavior” 😉 I can avoid any future problems. I now need to work on a stronger core to support the new bone that’s been created. Hoping to hold onto that spinal -1.0!
Cheers, have a fun weekend!
@beanieone There is good evidence that Reclast can often be taken far less often than every year perhaps every 2 years. . I'm guessing the only reason it's given every year (besides the profit motive) is that doctors (and patients) want to simplify things. Just give it every year and you do not have to use bone markers to know if it's still lowering bone cleanup. If you track your bone markers, ctx in this case you can wait until the ctx starts to climb before having another infusion. That could be 2 years or even more. Lani Simpson said recently that if your ctx is around 200 do not repeat, at 250 or 275 maybe repeat.