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Hailey-Hailey Disease

Skin Health | Last Active: Sep 3 7:58pm | Replies (169)

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@rnwwmn1

I have been diagnosed with Hailey Hailey Disease since 1986. At first I was prescribed different creams, but they did not help much. In 1994, I was given fluconazole for a superimposed yeast infection, that helped. In 1999 I had a severe outbreak throughout my inner thighs, entire perianal area, under my breasts, my underarms, and neck crease. I was prescribed Bactroban for 2 weeks, Benzaclin for 2 weeks, Altabax for 2 weeks. That routine helped some, but not completely. I used ice cubes to deal with the severe outbreak under my arms. The heat really made the outbreaks worse. I had to make a point to stay out of the sun and heat. In 2021, I met with another dermatologist from the university clinic. He put me on a trial of cyclosporine, (even though HHD is NOT an autoimmune disease, it is a genetic disease). To my surprise, the HHD symptoms diminished greatly! After that I was put on a low dose of methotrexate and my HHD symptoms were gone. I have had minimal symptoms since then.

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Replies to "I have been diagnosed with Hailey Hailey Disease since 1986. At first I was prescribed different..."

I also have xylocaine 2% jelly to numb the area if it is too raw and painful. I haven't had to use it since 2021.