← Return to Reclast Infusions: Side-effects & Recovery time

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@susanjane77

Hi @beanieone ,

I certainly can understand your concern about Reclast. I have six and during the last one(last November) the infusion nurse mumbled something about it being my last. I questioned her and she said to speak with my doctor. What??? Well try and get an appointment to speak to her.

I just had my bone scan the other day and have not heard the results. I am scheduled to see my doctor in two weeks to discuss the results and infusions. I will be curious as to what she says after having six infusions. Do I need another one and if so, will she change it from Reclast. I have never had any side effects from Reclast. If you call a headache or minor fatigue a side effect, then I had a side effect.

Oh by the way, I have never had any fractures but I did receive a diagnosis of osteoporosis 2 years ago after my DEXA score.

Will be happy to report back to you after my appointment!
Stick with the Reclast if it agrees with you and the doctor says you can have. I hear other drugs are loaded with side effects for some. I hope I do not need to change if I still need infusions.

Happy 4th and I hope I addressed some of your concerns.

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Replies to "Hi @beanieone , I certainly can understand your concern about Reclast. I have six and during..."

@susanjane77 I have been told Reclast is given 3-5 years. It is an anti-resorptive that increases bone density by lowering the bone turnover rate. Over time (according to my doctor, the book "Great Bones" by McCormick and numerous videos) that means lower quality bone so higher risk of atypical femur fracture or jaw necrosis. Still rare apparently, but that is why doctors usually prescribe a drug holiday at some point. Hope your DEXA is good and you can stop for awhile. Reclast stays in bone for years I was told.

Thanks @susanjane77, I was very interested in your history with six infusions in consecutive years; I maxed out at five. My doc told me that Reclast remains in ones system for quite awhile, so perhaps I can prolong my infusions by getting one every other year???

I hope to meet with a new rheumatologist within the next few weeks to have all of my questions answered - as I just finished Evenity, it’s a priority visit, but I need to get approval from my current doc, the new doc, and the department heads in two facilities!

My fingers are crossed for being able to get another turn at Reclast as I’ve had a four-year hiatus and had no side effects during/after treatments.

I’m so glad to hear you’ve not had any frax and I’m sending you good thoughts for your scores to be great! Hopefully with the meds and avoiding “risky behavior” 😉 I can avoid any future problems. I now need to work on a stronger core to support the new bone that’s been created. Hoping to hold onto that spinal -1.0!

Cheers, have a fun weekend!