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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)Comment receiving replies
Welcome, @as86. when getting a new diagnosis, it can be hard to even know what questions to ask. You've certainly come to the right place to find a supportive community. To get you started, I moved your post to thsi existing discussion:
- Essential Thrombocythemia: Looking for information and support
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/
I did this so you can read previous comments and connect with helpful and kind members like @nohrt4me @1995victoria @nyjean @preacherswife1977 to name just a few.
As you have more questions, you can use the group search to find more discussions related to ET : https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=Essential%20thrombocythemia&index=discussions
Have you been referred to a hematologist?
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I have posted many times on this site. A shortened personal history. 21 years with ET (triple negative). On hydrea for 10 years (since age 60). Doing well so far. I am now posing a question to the community or the "connect director". I have read elsewhere that ET is more prevalent in people with Ehlers-Danlos Syndrome (loose joints and scoliosis among other telltale signs). Does anyone know any more about this? Just curious .