1. < MAC & Bronchiectasis

Best medical center for MAC & BE

Posted by ncalvan @ncalvan, Jul 1 9:06am

I live in Knoxville and have been treated for MAC since 2019. Three years on the big 3 and 2 years with added Arikayce. I’d like to go to a major medical center with an NTM and BE clinic that has a solid multidisciplinary team. I’m deciding about Mayo or Cleveland Clinic. Anyone had experiences about either for a full work up? Any physician names would be very helpful. And what about Mayo Jacksonville? Or Rochester. Florida is closer for me if that’s a best choice. Thanks for any guidance and experiences.

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kbxraymom913 | @kbxraymom913 | Jul 2 9:27am

National Jewish Hospital in Denver Colorado. 303-398-1355.. Good Luck

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pmmar1 | @pmmar1 | Jul 2 10:13am

I second that, no matter the distance. National Jewish is the best!

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blm1007blm1007 | @blm1007blm1007 | Jul 2 10:40am

FYI: National Jewish is now associated with Mount Sinai Hospital in NYC.
"National Jewish is a non-profit medical and research center with a 115-year history of specializing in respiratory disorders and has been ranked for its excellence in respiratory care by U.S. News & World Report for the past 12 years and is now partnered with Mount Sinai Icahn School of Medicine for a jointly run ..." ALSO, UT Texas at Tyler, Texas. NYC and Tyler are closer to Knoxville, expecially if thinking of driving.

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pacathy | @pacathy | Jul 2 10:53am

Mayo in Rochester is also considered excellent. I was impressed.

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jill6063 | @jill6063 | Jul 2 4:32pm

I couldn’t be happier with National Jewish at Mt Sinai in NYC. Dr. Becker is my pulmonologist and he is just wonderful. Good luck!

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lorrainewenn | @lorrainewenn | Jul 3 2:18pm

I’m at Mayo Clinic in Rochester Minnesota and it is excellent.

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sadies1mom | @sadies1mom | Jul 3 7:05pm
In reply to @kbxraymom913 "National Jewish Hospital in Denver Colorado. 303-398-1355.. Good Luck" + (show)
@kbxraymom913

National Jewish Hospital in Denver Colorado. 303-398-1355.. Good Luck

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Do they treat from a distance?

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kbxraymom913 | @kbxraymom913 | Jul 4 11:44am

When I called, they said there was no Telehealth visits, thus you needed to see them in person.

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nancywf | @nancywf | Jul 4 12:45pm

Has anyone had any experience with the Bronchiectasis & NTM unit of NYU Langone in NYC?

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1 reply
minute22 | @minute22 | Jul 5 7:42am
In reply to @nancywf "Has anyone had any experience with the Bronchiectasis & NTM unit of NYU Langone in NYC?" + (show)
@nancywf

Has anyone had any experience with the Bronchiectasis & NTM unit of NYU Langone in NYC?

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Yes, I see Dr. Ashwin Basavaraj there and he and his team are excellent and up to date on research and treatment in BE and NTM.

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