Side effects from medication or progression of glioblastoma?

Ok, that makes sense. That is not one of my husband’s symptoms so he’s still driving for now. We’ll see what happens in the future but hoping he can drive for as long as possible, I think it would be very hard on him to lose that independence and since I work, it would be tough to manage logistically.

Never had seizures…vision issues with peripheral vision loss

Ok, thanks for clarification.

Hi. I am new to this blog thing, but was recommended by a patient in the office with me. My husband had been diagnosed with a Grade 4 astrocytoma/gliobastoma, MGMT promoter absent, and is also negative for the IDH mutation. He had a craniotomy on 4/4, and as of 7/6, he's completed 24 of his 30 radiation/oral chemo. His symptoms have been mild for the most part up until last week. He is feeling the nausea, and a mild headache but has since added another dose of zofran and taking Tylenol during the day. After the 30 treatments he will get a 3 week break, then get another MRI to see if the treatments has improved his situation. I pray every day that they find a miracle drug that will slow this disease down. Thank you for sharing your stories on here.

Hello, @lori615 and welcome. What a wonderful way to be introduced to Mayo Clinic Connect through meeting another patient in the waiting area.

It sounds like your husband's treatment journey is moving along with few bumps up til now. Have thhee Zofrran and Tylenol helped with the nausea and headache? Only 6 more treatments to go. How are his spirits? How are YOU doing?

Friend,
My husband, currently age 73, was diagnosed (and surgery to remove GBM-stage 4 ) on April 3 2023, We also went through 6 weeks radiation followed by T for one year. Some growth in a new area so we had a short stint of radiation and now a every 2 week stint at the infusion center.
My husband walks very clumsy and has also had falls. He recently and very reluctantly let me get him a walker with a seat. It is very lightweight and I purchased in April and he uses it more and more as has spells where he feels very uneasy walking.
Oncology was very pleased about the walker today! Dr says that MANY brain cancer and other cancer patients have falls and these falls are particularly dangerous because the body is compromised.
However, a LOT of his symptoms, my doctor blames on radiation.
You did not mention your husbands age, (bladder control) but I would ask the Dr. As you get older, that could be a separate problem.
One other thing, my husband has had this disease for almost 1.5 years. One of the worst thing right now is depression.
Right now I am concentrating on keeping things on an even keel. He has faith and that is a blessing.
I wish the best for you and hope I was of some help.

Update on progression…MRI 7/15 and still no progression after10 months 🙏🏻. Will continue with 1x month Chemotherapy.

Thank you Mary Beth. Your comments are helpful and encouraging. Peace to you as and your husband.