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Anyone else out there with extremely high lipoprotein (a)?

Heart & Blood Health | Last Active: 3 days ago | Replies (112)
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@agb

Hi Vivian: I've been on this cholesterol journey for more than 40 years now and from working with doctors, dieticians, and my own research, unless a person has an awful diet (doesn't seem the case for you), you can lower your cholesterol by about 10%. Everything after that is genetics or drugs. I started with total cholesterol in the 400's and LDL over 250. Statins and ezetimibe (Zetia) dropped that by more than half, but the LDL, at 105-109 was too high. The cardiologist added Repatha which has dropped all the numbers to an amazingly low level. Next blood draw is on Monday.

Did your MD order a lipoprotein B test? It's the carrier for LDL particles and the one my MD is most concerned about. I'm hopeful that the 3-drug regimen keeps working.

Good luck in your journey.

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Replies to "Hi Vivian: I've been on this cholesterol journey for more than 40 years now and from..."
naiviv | @naiviv | 3 days ago

Hi AGB. Happy 4th of July. I asked the cardiologist for the Lipo A but not B. They don’t order any of these tests unless patients ask and the majority of people don’t have a clue what tests to ask for. I am a RN and this is why I asked. There are no drugs at this moment to treat Lipo A there are 4 right now in trials 2 of them on Phase 3. I read from Cleveland Clinic cardiologists that they have found Statins increase the Lipoprotein A much more in addition that patients taking them can develop Diabetes. That is the issue with Statins. My lipid levels have come down with the Mediterranean diet, exercise since Jan 2024. It is genetic and there is nothing I can do just keeping up what I’ve been doing.
Stay safe and healthy and enjoy the 4th of July.

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