Wondering about any patients in Canada

Posted by zora0121 @zora0121, Jun 29 8:26am

Hi, I'm in Alberta Canada diagnosed with NSCL had a wedge resection, stage 2A
Scheduled for chemo, but learned thru my labs that I have KRAS G12D. ANYONE else here in Canada that has this? Where are you had what treatment are you receiving?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

denzie | @denzie | Jul 1 9:07am

There is a Facebook group called KRAS Kickers. You may find others there.

zora0121 | @zora0121 | Jul 2 10:37am

In reply to @denzie "There is a Facebook group called KRAS Kickers. You may find others there." + (show)

Yes, thank you I have joined that group, much appreciated!

Lisa, Volunteer Mentor | @lls8000 | Jul 2 10:59am

Hello @zora0121, There are others here from Canada, but I am not. Generally having access to a larger teaching or research hospital can give patients the greatest confidence in their care. It's important to have a team that is familiar with treatments for your specific type of cancer. Not all NSCLC's are the same, and treatments need to be a good match for the specific type of cancer.
In Canada, do you have options to select where you are seen? Logistically, are you able to seek care at a selected location, someplace not too far away or easy to travel to?

zora0121 | @zora0121 | Jul 2 2:41pm

In reply to @lls8000 "Hello @zora0121, There are others here from Canada, but I am not. Generally having access to..." + (show)

Our current system is incredibly overburdened and will only get worse with the federal government increasing taxes for Drs. You don't get to pick and choose a Dr. You get assigned your Dr. At least for Cancer treatment.
I'm very anxious regarding my oncologist, he didn't discuss anything with me, staging, mutation. I tried to ask about immunotherapy he said we talk about that later. I asked about my prognosis. He searched his phone and told me with treatment 57 percent don't make it 5 years..

annbosley | @annbosley | Jul 3 8:41am

In reply to @zora0121 "Yes, thank you I have joined that group, much appreciated!" + (show)

Yes - l had the lower lobe of my right lung removed robotically at Toronto General Hospital - the Sprott Foundation. One year later, I can do everything I used to - although my golf is worse (which probably doesn’t reflect the op). Still cough but even that is slowly improving.

zora0121 | @zora0121 | Jul 3 10:39am

Thats very good news. Can you tell me what stage you were?

jill7517 | @jill7517 | Jul 4 8:09am

I’m in Montreal and had an upper left robotic lobectomy in April. I had a brilliant surgeon (surgery took only 45 minutes plus 45 minutes to set up the robot). However, after-care was virtually non-existent, but I read widely, so knew what exercises to do etc. I will have annual CT scans.

I am now walking 5 km (3 miles) a day and back in the gym working out with weights at close to my previous level. However, when I do ab exercises, it feels as if I pulled a stomach muscle. I do get a bit breathless walking up hills.

I have an irritating cough, which my doctor said is just the lung healing. How long should this last?

I am pretty sure that I broke a rib during or soon after surgery, but it did not show on an X-ray and I didn’t want a CT scan. It looks like a rib is sticking out a bit on my left side. Anyway, there is no treatment for a broken rib and I am no longer in pain.

I am 76 years old. My cancer was adenocarcinoma Stage Ib.

zora0121 | @zora0121 | Jul 4 8:37am

In reply to @jill7517 "I’m in Montreal and had an upper left robotic lobectomy in April. I had a brilliant..." + (show)

Thank you so much, I really appreciate you taking the time to share! Means a lot

trudyhs | @trudyhs | Jul 5 8:28am

In reply to @zora0121 "Thank you so much, I really appreciate you taking the time to share! Means a lot" + (show)

Hello, I’m in SW Ontario. I was diagnosed 4 1/2 years ago while living in North Carolina and was originally treated at Duke Cancer Centre in Durham with an upper left lobectomy followed by four rounds of chemotherapy, stage 2b. I have multifocal lung cancer, which means I have several nodules in my lungs and each are their own primary, no metastases or lymph node involvement. Four months ago I had a second surgery, which was done at Juravinski Cancer Centre in Hamilton Ontario. Robotic upper and lower right segmentectomy. No further treatment other than the extensive naturopathic treatments that I do. Both surgery experiences were positive and I have no complaints about my care before or after in either location. I was able to request, through my Respirologist, robotic surgery, which my local Cancer Centre did not have and he referred me to Hamilton. This recent surgery has left me with a cough, which I hope will resolve, and a definite change in lung function although it doesn’t hold me back too much. I’m a 64 year-old grandmother and as long as I can do a little travel, gardening, enjoy my kids and grandkids and go for good brisk walks I’m happy. I wish you well in your recovery.

zora0121 | @zora0121 | Jul 5 9:03am

In reply to @trudyhs "Hello, I’m in SW Ontario. I was diagnosed 4 1/2 years ago while living in North..." + (show)

Thank you for sharing and for your warm wishes, both much lyrics appreciated. Started my chemo yesterday in red deer alberta. Praying it goes well..
I have a wonderful son, daughter in law and baby granddaughters I want to see into their teenage years, God willing
I send positive thoughts your way for your journey