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Myelofibrosis*

Blood Cancers & Disorders | Last Active: Jul 7 12:31pm | Replies (114)
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@sunbird09

I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just looking for people that has this as well and how are they dealing with it.

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Replies to "I have had Pilycthemia Vera for almost 20 years. It’s now has changed to Myelofbrosis. Just..."
Lori, Volunteer Mentor | @loribmt | Jul 4 11:34am

Welcome to Connect, @sunbird09 Over time, some people with PV may develop MF. This occurs if scar tissue replaces bone marrow which can interfere with the bone marrow’s ability to produce enough healthy blood cells.

Here’s another link to a good discussion in the forum with members who have MF. You can reverse the order of the conversations to see the most current replies.
Do you know if you have a genetic mutation such as JAK2?

~Myelofibrosis w/ JAK2 mutation
https://connect.mayoclinic.org/discussion/myelofibrosis-w-jak2-mutation/
Where you on any treatment plan for your PV? What has your hematologist oncologist suggested for this next phase of your condition?

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