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DiscussionDoes anyone have HHT? Hereditary Hemorrhagic Telangiectasia
Blood Cancers & Disorders | Last Active: Aug 14 6:54am | Replies (6)Comment receiving replies
Replies to "Hi. My name is Heather. I am 55 yo and have suffered with severe nosebleeds since..."
Let me officially welcome you to Connect, Heather, though I see you’ve been a member for a few years. Thank you so much for sharing your experiences with HHT. The advancement in treatments is remarkable and I’m so happy you’ve finally found the some relief from the chronic nose bleeds! I can certainly understand how life changing this must be for you. I had unpredictable nose bleeds for a short while as a side effect to a medical condition under treatment. I can only imagine having that be a chronic condition and the impact on daily life.
I’m tagging @amartin945 to make sure she sees this positive post intended for her!
Thank you again popping in to the conversation! Would you be able to share the name of the infusions you’re receiving?