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@heathshan

Hi. My name is Heather. I am 55 yo and have suffered with severe nosebleeds since I was a young child. My grandfather and his generation of HHT suffers told my mom in the 1970's not to let them cauterize my nosebleeds (by old-school traditional cauterization). That just created more and more scar tissue in their nasal cavities and new blood vessels grow and bleed anyway.
In the mid and late 1980's, I had YAG laser treatments every month in Minneapolis for several years. That really helped lessen the bleeds and the laser did not create scar tissue.
About age 50, I finally started seeing the HHT specialist at Mayo Clinic in Rochester, MN.
I now get infusion therapy treatments of a generic or biochemical similar med to Avastin. The treatments have been LIFE-CHANGING for me. There are also other options of treatments or trials being studied for HHT. I wonder if the cauterization you get now is similar to the YAG laser treatments I used to get. I tried to request laser cauterization from an ENT 10-15 years ago and he said they only use it in very severe cases and only completely under with anesthesia.
Best of luck to you!

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Replies to "Hi. My name is Heather. I am 55 yo and have suffered with severe nosebleeds since..."

Let me officially welcome you to Connect, Heather, though I see you’ve been a member for a few years. Thank you so much for sharing your experiences with HHT. The advancement in treatments is remarkable and I’m so happy you’ve finally found the some relief from the chronic nose bleeds! I can certainly understand how life changing this must be for you. I had unpredictable nose bleeds for a short while as a side effect to a medical condition under treatment. I can only imagine having that be a chronic condition and the impact on daily life.
I’m tagging @amartin945 to make sure she sees this positive post intended for her!

Thank you again popping in to the conversation! Would you be able to share the name of the infusions you’re receiving?