Connect
← Return to Reclast Infusions: Side-effects & Recovery time
Discussion
Reclast Infusions: Side-effects & Recovery time
Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (605)Comment receiving replies
Hi @susanjane77,
I've been desperately trying to uncover the number of consecutive/lifetime doses of Reclast that are permissible. I had the recommended five infusions (2011-15) and two more around 2019-2020. My doc recommended a drug holiday after 2015, which was ended by the discovery of several compression fractures in 2017 and after.
I see you have had six Reclast infusions (in consecutive years) and wonder if you have any info to share about the subject. I just finished Evenity preceded by 8-1/2 months of Tymlos; my spinal T-score is now at -1.0. My doc wants me to get set up for Prolia, but when I mentioned Reclast, because I had good success with it in the past, he said (in a very noncommittal voice), "You could probably do Reclast." Wait, what!!??
Thanks for any info you can provide. Happy Fourth of July!! Cheers!
Replies to "Hi @susanjane77, I've been desperately trying to uncover the number of consecutive/lifetime doses of Reclast that..."
Hi @beanieone ,
I certainly can understand your concern about Reclast. I have six and during the last one(last November) the infusion nurse mumbled something about it being my last. I questioned her and she said to speak with my doctor. What??? Well try and get an appointment to speak to her.
I just had my bone scan the other day and have not heard the results. I am scheduled to see my doctor in two weeks to discuss the results and infusions. I will be curious as to what she says after having six infusions. Do I need another one and if so, will she change it from Reclast. I have never had any side effects from Reclast. If you call a headache or minor fatigue a side effect, then I had a side effect.
Oh by the way, I have never had any fractures but I did receive a diagnosis of osteoporosis 2 years ago after my DEXA score.
Will be happy to report back to you after my appointment!
Stick with the Reclast if it agrees with you and the doctor says you can have. I hear other drugs are loaded with side effects for some. I hope I do not need to change if I still need infusions.
Happy 4th and I hope I addressed some of your concerns.
Connect
@beanieone if your spine is -1.0 why are you doing any meds?
In 2017 when you had your compression fractures, what was your DEXA score for spine?
Just wondering if you have bone quality issues from so many Reclast infusions vs bone density issues. I am surprised compression fractures were treated with Reclast in 2017!
Did Tymlos after Reclast work well? Did Evenity work well after the Tymlos? ( I was the only patient in both my endos' practices to do Evenity after Tymlos, surprisingly, and I had to pester them to allow it.)
Your story may be reassuring in some ways for those of us who are doing Reclast after Tymlos, Forteo or Evenity. Many of us hope to again do an anabolic and have some effectiveness.
But sorry about your compression fractures! I have 7 and know how difficult they are. Hope you are doing well. Maybe you can "lock in" gains with one Reclast infusion and be done-?