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Looking for recommendations of doctors with expertise in CMML
Blood Cancers & Disorders | Last Active: Jul 3 10:02am | Replies (14)Comment receiving replies
Hi, Lori: I’m happy to say that my friend visited Mayo in mid-June, and they confirmed that she can be monitored every 2 months and no treatment is needed at this time. I hope it never progresses to AML and the need for a transplant. I am doing well, other than some pesky issues I had with my liver enzymes (again) and neuropathy in my feet. Are you attending the transplant picnic? I will be there and hope to meet you in person!
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That’s good news for your friend…doesn’t hurt to have that backup confirmation from Mayo! I hope she never progresses to requiring a transplant either but it’s nice to have that option in the background if it comes to that. You and I both know that team well. ☺️
My only remaining issue are the pesky liver enzymes too. I’ll have months where things are fine then a trending creep upwards only to return to normal a few months later. Weird. I can’t blame that on any bad vices! LOL.
I just CELLebrated my 5th re-birth day so at this juncture, my doctor isn’t too concerned because nothing has escalated. But he keeps a wary eye on the numbers. At my last Mayo followup in April my leash got lengthened between blood work to 6 months. That made me feel that my doctor has confidence in the numbers, so that was encouraging.
Oh, now I’m bummed not to be at the picnic this year! My husband and I talked about heading to Rochester for the event but we’re have another obligation that makes the trip a little too compressed on our calendar this year. I’m sorry to miss out on the chance to meet in person. Hopefully in the future!
Nice to hear from you! ☺️