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@lls8000

@environmom, What a tough position to be in. There is a Mayo Connect Caregivers group too, I'm not sure if you've found that: https://connect.mayoclinic.org/group/caregivers/.
Has her oncologist provided any input on the weight loss? Is that possibly related to the Keytruda, and not a cancer recurrence? Does she still get periodic scans?

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Replies to "@environmom, What a tough position to be in. There is a Mayo Connect Caregivers group too,..."

Thank you. Oncologist gives very basic info - there is a small increase… that’s about it. She does get scans every 3 months. Oncologist only does phone appointments so we have never seen any images. No info on weight loss - he hasn’t even mentioned it. The nurses who give her her infusions are the only ones who mention her weight and blood pressure. It’s very frustrating, but after spending 2 days in the ER because she was anxious and couldn’t get a good breath, the Pallitive care team spoke with her about hospice. They explained much more about her condition and she signed up. She was very appreciative that they spoke with her about her condition. I am glad we are done with that oncologist.