← Return to CAR-T - Looking for statistical data for over 70 age group

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@loribmt

Hi @ntsimpson, I just wanted to check in with you to see how your husband is doing. I know rejecting treatment is a huge personal decision that impacts not only your husband, but you and your family as well. Has your husband reconsidered? Has his doctor been able to offer another option for him? And…how are you coping as the caregiver?

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Replies to "Hi @ntsimpson, I just wanted to check in with you to see how your husband is..."

Sorry for my delay in writing. My husband will undergo CAR-T shortly. He will enter a clinical trial in Toronto. CAR-T hasn’t been that successful for CLL, but Princess Margaret Hospital is hoping this trial will offer a better outcome. We had to wait for funding ($1 mill per patient) and a protocol change (no washout period). I imagine he will have the cell collection by the end of this month. In the meantime two drugs are keeping him “healthy” as we wait for the trial. His docs are amazed. The combo hasn’t been used before. Sometimes these breaks in disease progression are about trial and error. My husband is back in the tennis court (age 75) and this makes him happy. Personally, I don’t like the word “caregiver”. As a spouse I think we are as equally affected as the patient. There needs to be a better word! We just went on a week long cruise. We vowed not to discuss my husband’s CLL journey, because you can really get mired in the medical stuff! It was very healthy for both of us!