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@marlysmae

I was diagnosed with Pancytopenia on January 29th. Got to see a hematologist on March 19th, who ordered a bone marrow biopsy, which was done on April 2nd. Next appointment was three weeks later, April 23rd. I was told I have MDS, which is a blood cancer. Apparently all the tests weren’t in, as I made another appointment for May 8th to see what the prognosis is. I was told it is MDS high risk. The oncologist in Bismarck recommended I go to Mayo, as they may be better with testing. So on to Mayo June 6th, where they wanted their own biopsy done. Was told I would have a video appointment when the results were back, 2 to 3 weeks. A week later, the Doctor from Mayo called, said they wanted me out there as soon as possible. I was then told the MDS had morphed into AML with the inv(3) mutation. It is very rare and very aggressive, also very difficult to treat. I was told they see 5 people a year, at best, with this mutation. I will be here at Mayo for a month, and have an appointment tomorrow with the transplant people, suppose they will tell me if I am a candidate? This is getting too long, but hopefully it can give you an idea of how long it took for me to get anywhere with this journey! Good luck to your dad, hopefully they can treat him so he can still enjoy his life! ❤️

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Replies to "I was diagnosed with Pancytopenia on January 29th. Got to see a hematologist on March 19th,..."

Hi Vicki, @marlysmae. I wanted to wish you well with your visit with the transplant doctor at Mayo tomorrow. This is an area near and dear to my heart. You’ll be in the most capable hands there. I know it’s a big decision to have the bmt so there will be much to discuss. If you have any question or need a sounding board I’m here for you any time. If you don’t mind, would you please let me know what you find out tomorrow?

Thanks for responding. Oh my gosh, wow! I appreciate your information. I hope you get through the treatment as well. I’ll be praying for you!🙏🏼🙏🏼💕💕