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Longtime caregiver looking for support and coping tips

Caregivers | Last Active: 15 hours ago | Replies (105)

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@kellysuebarker

It's just so heartbreaking and exhausting.... 😭. Sometimes rewarding but almost of the time I feel so broken like I can't do anything right. My faith and prayers sustain me...

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Replies to "It's just so heartbreaking and exhausting.... 😭. Sometimes rewarding but almost of the time I feel..."

Stick with the caregiver. I have orchestrated caregivers for my 90s aunt and uncle with dementia over the last year. They didn’t want to do it in the beginning, but as we kept after it they started to accept it. Some caregivers are better than others and when they hit is off, it becomes much easier. I also had to remind them that we had discussed and planned this together to bring in needed help. It will get easier especially if he is cognizant enough to see the chores he is doing to help you. And keep emphasizing it is to help you, not him. I bet he will come around with time. Dementia is such a burden. You are doing what you need to for your own health. Be strong and delegate to family and friends where you can.

@kellysuebarker Welcome to Mayo Clinic Connect! We’re certainly glad that you found us! But you sound so sad and frustrated.. What can we do to help you?