Cytokine Release Syndrome/Polymyalgia Rheumatica

A few years back I was diagnosed with Cytokine release Syndrome by an immunologist & a year later Polymyalgia Rheumatica by a rheumatologist. These occurred AFTER the one & only shot of the Pfizer Vaccine.
I followed the recommendation of the Rheumatologist to use 20mg daily Prednisone despite my fear & apprehensions & after 4 months I became intolerant to this medication & had to go off Prednisone due to not be able to contact my Family Doctor or the rheumatologist about my struggling to breath, hives server headaches swelling of the body especially the throat area & daily nausea where I just couldn't eat except for broth & wasn't sleeping longer that 2 hours at a time. Since going off prednisone, I feel & function a lot better despite not using any medication & a modification of my diet & using Tinctures & herbs to reduce inflammation.
Since then, I have managed, however what bothers me more then the PMR is the Cytokine release Syndrome & read up on it & came to realize that its the Cytokine release syndrome I need to be more concerned about.
I am monitoring my PMR well enough to stop worrying about this condition for the time being & focus on dealing with the CRS instead because the information I read indicated it needed to be addressed immediately otherwise I could experience serious issues that could lead to death if not addressed & although I tried my best to explain this to my Doctor, he insisted we deal with the PMR & continued to push Prednisone despite me telling him that it wasn't working for me & the side effects where far to toxic to me than the PMR.
He stated that the CRS will go away after a year & after discussing it & we came to a decision to try Pregabalin as a medication for pain which I did not take & is still in my nightstand because the one side effect ( ACUTE HEART FAILURE ) has me so concerned I stopped seeing my Doctor stopped all medications mostly due to my fears of strong medications for which I stated to my Doctor too numerous times that I cannot do high dose medication & I was also NOT informed that I had other options that could have been a better choice for me such as (LDN) or Low Dose Naltrexone or Low Dose Prednisone.
They are not allowing me to make an informed decision as to how I will manage these diseases by telling me what my options are for medications.
I am so frustrated at the lack of attention on behalf of medical professionals, buy by not cooperating with my requests has placed me in a predicament & possibly reporting these 2 doctors. In the meantime I am getting sicker daily.
I am barely holding my own at the moment & very reluctant to talk to the doctor bnow cause the anxiety I get going to a medical clinic because I cant make doctors understand my issues with high dose Pharmaceuticals & my need to address the CRS instead & get retested for this condition.
I need guidance on how to address my Doctor about my concerns which continues to be ignored in favour of what they want as a result I no longer trust doctors & is not turning into complete avoidance of the healthcare system to avoid becoming seriously ill due to over prescribed high dose drugs that really messes me up.

~HELP~