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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: Oct 28 6:03pm | Replies (227)
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@kkd

Just wanted to update the group that they did CT scan in Feb 2024 and they found that the plate dropped a little bit into my mouth, only option was to remove the plate through surgery. I completed radiation in Sep 2023, they had to wait 6 months after radiation. Did MRI in Apr 2024, no tumor growth. Finally got the plate removed in May, the bone is healthy and fused, so no biopsy done during surgery. It's been 6 weeks since I got the plate removed and next MRI scheduled for Oct 2024 to monitor the tumor. Working on mouth opening exercises, still around 15mm opening.

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ssalava | @ssalava | Jul 10 1:25pm

for those that are on Facebook, there is a private Ameloblastoma group:
https://www.facebook.com/groups/154326351301307/
although I sometimes feel bad reading about others with Ameloblastoma tumors who don't have access to the excellent Mayo care.

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William Olsen, Volunteer Mentor | @hrhwilliam | Jul 16 10:07am

Thanks for the info. As far as mouth opening goes, with lots of practice I can now consume a large sandwich or hamburger using a knife and fork and eating European style, fork reversed in left hand and knife in right without switching out like we do in the states. As always, everything is cut into small bites. I get looks in restaurants especially eating chicken or ribs with utensils but I don't really care, it works. Good luck with finding what works as time goes by.

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