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Blood Cancers & Disorders | Last Active: Sep 2 9:31am | Replies (11)
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Hi @betsy01, Welcome to Connect. Would I be correct in assuming you’ve been diagnosed with Hereditary Hemochromatoisis? This is a metabolic disorder where iron can accumulate in the organs over a period of time causing damage. Were you experiencing symptoms that led to your diagnosis? How are you being for the condition?
Replies to "Hi @betsy01, Welcome to Connect. Would I be correct in assuming you’ve been diagnosed with Hereditary..."
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Yes, I have hereditary hemochromatosis. My ferritin is currently at 3886 and saturation is 97%. I am miserable most of the time. My body aches all over. I itch constantly. I get nauseous often. It’s starting to be hard at work for me. I have liver issues. 30% stenosis. It’s confusing and no one really knows much about it. I get phlebotomy once a week.