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I've had CML for 20 years and want to encourage others

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (102)
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@jacklyn

Thank you so much Lori. You are so right about my white cell count bring high and my spleen is enlarged. So I think like you say she wanted to get it down so put me on a high dosage if highdroxy. She did agree though right away when I asked if I could start slowly. I also like your idea about how to increase it. You are also right about life span. I do know better and will not be looking up on google. I am grateful for all your input. You put everything into perspective and see right through it all. I will let you know what happens on Tuesday. God bless you.

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Replies to "Thank you so much Lori. You are so right about my white cell count bring high..."
jacklyn | @jacklyn | Jul 2 5:55pm

I went to see my oncologist with my son. Not the best news. She said I have CMML with 6 mutations that they don’t like and has something to do with AML. She is going to start me on a drug called ascidene (?) and a pill. She said the pill can mess up your other counts so they keep a close watch. She said the problem is if and how long the treatment works for.
She was up front and said statistically it ‘s 2 years.
However it depends some CMML patients do well on the treatment. Are there any people on this site who has CMML and had good results.

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