← Return to Multiple Myeloma: Come introduce yourself and let's talk

Discussion
Comment receiving replies
@auntieoakley

Good for you, that you are learning all you can. I really feel like the information is so crucial with this complicated disease. Have you gone to the IMF and requested the information pack yet? You can pick them up at Mayo too. Husband was told swimming and walking were really his only options for safe exercise but walking was the most beneficial. Transplant was hard for him but it is only one dose and when it is done, it is done and you have time to recover, he has had two with the second about a year after the first giving him a complete response. You can do this! We went to Rochester but I am sure it will be basically the same. If you are going to go, give me a tag and I will share my best tips. You can take what you like and discard any tips you don’t need. I hope you don’t mind, but you just landed on my prayer list. I would like to address the fatigue, I know it is hard now, and every body is different. That being said, my husband was very,very fatigued for a long time before he was diagnosed. If it was eating holes in all your bones it was pretty advanced like his was. He actually started feeling better after a while on the revlomid. The transplant knocked him down but then he actually started feeling better and better. The treatments can cause fatigue, but in his case at least, the lack of normal blood counts was the big driving factor for fatigue, the more the disease got under control, the less fatigue he felt. I will say that he is tired a lot now, but he is mid 70s, and still does quite a bit each day.

Jump to this post


Replies to "Good for you, that you are learning all you can. I really feel like the information..."

Yes, I was having fatique, before, diagnosis. And for about 1 year prior, I noticed I was gradually having more and more sinus and bronchitis infections. From January, 2019, through mid March, 2019, I was not able to fully recuperate from the respiratory problems, and developed new onset asthma symptoms. In March, I was treated aggressively with steroids/breathing treatments, antibiotics, etc., and due to bad chest x-ray, had a chest CT on March 25. This CT showed cleared up lungs, but multiple lytic lesions on thoracic and lumbar spine. Thus leading to diagnosis of MM, in June. I thought my intermittent back pain was from nursing for 25 years, and the fatique, from being 54, and working night shift for 9 years! Now here I am! Sorry for the long post, but just still wrapping my head around it all! Thank you for sharing you and your husband's personal experience! And for your prayers! Will add you both to my prayer list, too!