Anyone spent their life with a meningioma? Any side effect?

i am 70 and have known i’ve had a meningioma for about 6 years. Thus far, it has primarily been asymptomatic

Many meningiomas are not even diagnosed until autopsy! It seems that unless they are causing problems, they may not be diagnosed. However, since you must have had problems of some type, I suspect that you were having issues that may need treatment or in many cases, watchful waiting.

@rma83, I hope you saw the replies to your post from @pnf24 and @elisabeth007. Active surveillance (watchful waiting) is a common treatment approach with meningiomas that are not causing symptoms and not growing.

RMA, how was your meningioma discovered? Do you have symptoms?

Good Day-- Don't know how long I've had this, but in High School, I had a very hard time with Algebra, but managed to be OK with Geometry. I also have a very hard time focusing and concentrating, and my balance is terrible. I am 77 years old but in my brain, I feel like a 20 year old.
Sharp noises affect me and I always feel the need to be early for any appointments. I also struggle with people who can't seem to think ahead and make plans.
I was diagnosed with this condition and also with Vascular Dementia during my Vestibular testing and my Psych Eval and also from an MRI at my local VA hospital.
This, combined with Spinal Stenosis and Diabetes prevents me from leading a normal lifestyle and I am greatful that I have a loving wife who helps me with a lot of my problems. Any suggestions?

i was told the same thing by my neuro-opthamologist. My M was found in 2018 “incidentally. Just recently, after the last MRI on
5/7/24….a question has emerged as to whether i need treatment, whether i should have surgery or radiation and how long i can wait, Right now im scheduled for a 11/6/24 MRi w an NS appt immediately after

Welcome, @dickroy47. I invite you to click the link below and join the discussion with other members living with dementia.

- Support Group for Those of Us Living With Mild Dementia
https://connect.mayoclinic.org/discussion/can-we-have-a-support-group-for-those-of-us-with-mild-dementia/

My M has grown but my protective medical team has insisted that i stay on watch and wait until other potentially more serious conditions are stabilized

Hi,
just wondering if other conditions are related to your M?

I was 38 years old when I was diagnosed with a meningioma in 10/22/2018. It was the size of my left hand and went behind my eye and then up wards. On 11/9/2018, I was operated on at another center. It wasn't able to be removed because of the lesion was too fibrous, brain swelling and acute blood loss. A portion of my skull bone was removed 25%. When I went back in to have it replaced a few weeks later, I ended up with a skull infection! I had to have 3 more surgeries over the next several months. Then I had radiation with it ending on 6/19/2019. My neurosurgeon I had ended up moving to another city and the one he left me with was not kind or friendly. So, I went on the hunt for another solution when I found my second re-growth at the end of 2021.

I went to Mayo Clinic in early 2022. I went through a clinical trial, Lutathera, which required myself to go through isolation afterwards for a specific time frame each time frame. I had to complete this treatment x4 with the IV therapy every other month. I've had to go through medications, and I still had a one more re-growth from which I was required to have Proton therapy! I am now on Avastin, Dexamethasone, Keppra, Warfarin, and other medication to keep on my target as "STABLE" now with my MRI's.

While I wish this isn't your journey or story! Enjoy this time now, we only have an option and that is to live!

Hello - I had a meningioma 4.2cm x 2.8cm discovered after a fall (unrelated) in June and after watching for 3 months have decided to have it removed in mid October at Mayo PHX. I have developed a few symptoms to share - difficulty with word finding, a little fuzzy headed feeling sometimes, slight instability sometimes, and possibly a couple of weak seizures (fuzzy eyesight sort of like migraine spots, some confusion) which has resulted in me being put on meds (Keppra). Previously I thought anything like this was just from aging. The medical team seemed surprised from the beginning that I had no previous symptoms with that size meningioma, and I feel VERY blessed to have tripped over my cat, hit my head, and gone to the ER to get checked where it was discovered in time to get it addressed before more symptoms grow.
At 66 yrs I am working to strengthen my aerobic capacity and muscular strength to prepare for surgery. I've also cut out sugar, alcohol, and processed foods for this preparatory time. I share my symptoms in case others may want to pay attention for those kinds of things developing for you - though we know each case is different. I am very pleased to be with the team at Mayo for this journey.