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Multiple meningiomas in past, but now my new tumor is GBM4
Brain Tumor | Last Active: Aug 5 8:54am | Replies (7)Comment receiving replies
@pnf24, if you are exploring Optune, you may be interested in this related discussion:
- Glioblastoma (GBM) trials and therapeutic devices (Optune)
https://connect.mayoclinic.org/discussion/gbm-trials-ttfields-brain-device/
I'm tagging fellow members like @ruthannray @thomhorowitz @IndianaScott @boilerbob who have experience with glioblastoma as a patient or caregiver.
How are you doing with radiation and temodar? Are the side effects manageable so far?
Replies to "@pnf24, if you are exploring Optune, you may be interested in this related discussion: - Glioblastoma..."
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@colleenyoung thanks for connecting me with others who may offer advice. I am doing very well with the rad/chemo protocol. I’ve had 18 treatments with 12 to go. Only side effects are occasional fatigue and hair loss. I was MGMT profiling present so doctors said I should respond well to this treatment. Trying to arm myself with knowledge for next steps