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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)
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@loribmt

Welcome to Connect, @58skywagon. Thanks for sharing your positive news about the treatments you’ve used for your CTCL. It can take some sleuthing to get the right diagnosis and then again, for treatment options! Sounds like you have a great combination between the Clobetasol cream and the light treatments. Do you have a light box at home or did that require trips to a clinic?

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Replies to "Welcome to Connect, @58skywagon. Thanks for sharing your positive news about the treatments you’ve used for..."
58skywagon | @58skywagon | Jun 29 11:07am

I was able to get a Daavlin narrowband UVB light box. It is about 6 feet tall and has 8 lights. The unit folds up nicely. It has saved me a lot of time. I have done about 35 treatments, about three times per week. Started with a low dosage and gradually increased the exposure.

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