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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 9 8:01pm | Replies (175)

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@58skywagon

I was diagnosed with CTCL in October of 2022. The diagnosis was finally done after a couple of years of having a rash on my back. I was seen by Mayo Clinic and was given a prescription of Clobetasol .05% cream. I also acquired a narrowband UVB light box. Between the cream and the light treatment the rash is under control. I did about 35 treatments of the light and am now taking a break. Still using the cream on a daily basis.

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Replies to "I was diagnosed with CTCL in October of 2022. The diagnosis was finally done after a..."

Welcome to Connect, @58skywagon. Thanks for sharing your positive news about the treatments you’ve used for your CTCL. It can take some sleuthing to get the right diagnosis and then again, for treatment options! Sounds like you have a great combination between the Clobetasol cream and the light treatments. Do you have a light box at home or did that require trips to a clinic?